-
RDAP "Ask Me Anything" Townhall webinar "What is different about Clinical Data?
Nina Exner, Christy E. Navarro, and Lori D. Sloane
This webinar was presented to the RDAP community on January 29, 2020 @ 1 pm EST. The goal of the webinar was to raise awareness of the special requirements of clinical data for data management.
Managing data has a number of common principles that get applied to each subject domain. As a result, it’s easy to start consideration of data with a disciplinary subject and data structure. But in the health sciences and medicine there is a key issue that has to be asked first: Is it clinical research data? Before delving into metadata standards, FAIR principles, or sharing, a health sciences data librarian often starts with the clinical/nonclinical distinction.
But what’s so special about clinical data? What do we even mean when we talk about clinical data? This session will introduce basic concepts in clinical data management, processes that are commonly used by researchers looking to do clinical data research. We will explore how a health sciences library can provide patron support on local infrastructure for accessing and using clinical data for research. We will also provide resources for further exploration by librarians and patrons.
Attendees will come away with:
(1) a better understanding of basic terminology and data workflows in clinical research data management;
(2) a sense of typical workflows that happen with the clinical research data lifecycle;
(3) an introduction to systems in clinical data collection and analysis, particularly REDCAP; and,
(4) at least one answer to the question of “What’s different about clinical?” When it comes to data.
Date: January 29, 2020 @ 1 pm EST -
Global Health Outreach: Organizing a Book Drive for Malawi
Karen R. McElfresh, Laura J. Hall, and Patricia Repar
This presentation describes the organization of a book drive for the Malawi College of Health Sciences in Blantyre, Malawi. The College’s library serves about 700 students, as well as healthcare professionals from a neighboring hospital. However, the library lacks sufficient resources, with most of their books being outdated or in poor condition, diminishing health care quality in Malawi.
-
Planning and Completing a Book Drive for Malawi
Karen R. McElfresh, Laura J. Hall, and Patricia Repar
In the Spring of 2017, our library conducted a book drive for the Malawi College of Health Sciences in Blantyre, Malawi. The College’s library serves about 700 students, as well as health care professionals from a neighboring hospital. However, the library lacks sufficient resources, with most of their books being outdated or in poor condition, which diminishes health care quality in Malawi.
-
Considerations in Caring for People with Physical Disabilities: A Course Elective
Ingrid C. Hendrix, Sarah K. Morley, and Jennifer Benson
Context: People with disabilities represent a significant portion of the population. A 2007 Institute of Medicine report, The Future of Disability in America' noted that barriers to equal health care for people with disabilities include physical barriers, and knowledge and attitudes related to caring and interacting with people with disabilities. People with disabilities (PWD), as with many other groups disadvantaged by social inequities, often receive suboptimal care from health care providers. The root cause of this inequity in care can be traced to a lack of training for health care providers in dealing with PWD. The AAMC has recommended medical schools evaluate their curriculum and address gaps in providing education addressing health care disparities. Objectives: To address this identified knowledge gap at our institution, the authors developed and taught a 7.5 hour elective for second and third year medical students in Spring 2014 and repeated in Fall 2014. The overarching goal was to raise awareness about experiences encountered by people with physical disabilities in the healthcare setting. Objectives covered over five sessions included an examination of attitudes about disability, community resources for meeting the needs of PWD, communication, advocacy and access, and interdisciplinary team collaboration. Using an interactive format (small and large group activities, discussion, case-based scenarios, and interaction with people with disabilities) provided learners with a rich experience. Key message: Training learners to interact with patients with physical disabilities should be a vital educational objective of all medical schools integrated throughout the curriculum. This significant population has unique needs requiring a more holistic approach to their care. Incorporating real-world examples and personal discussions with PWDs, may increase awareness of issues confronting those with a disability thus enabling health care providers to be more comfortable interacting with this patient population. Conclusion: Feedback from learners indicated overall satisfaction with the interactive format and the content of this elective. Learners described the importance of hearing directly from people with disabilities. In addition, being made aware of community resources and physical access in the clinical setting led to greater understanding of patient challenges. Successful introduction of this content recommends incorporating a more integrative approach to this very important and neglected topic.'
-
Implementing a Demand-Driven Acquisitions Pilot
Karen R. McElfresh
OBJECTIVE: The purpose of this poster is to describe the implementation of a Demand-Driven Acquisition (DDA) plan at an academic health sciences library. The poster will also describe how the librarys new Integrated Library System (ILS) supports DDA plans by providing an automated workflow to manage pools of available and purchased titles. METHODS: DDA plans allow libraries to vastly increase the number of titles available in their collection and typically result in overall cost-savings because titles are not purchased unless they are accessed by users. The University of New Mexico Health Sciences Library & Informatics Center piloted a DDA plan in 2015-16 as a way to provide e-books on narrow topics that typically would not be of interest to a wide number of users. Librarians reviewed various DDA programs with different providers and chose one that works seamlessly with the library's ILS, OCLC's WorldShare Management Services. The success of the pilot will be determined by looking at the number of titles loaned and/or purchased, total expenditures, and cost per use. Additionally, the vendor allows the library to create survey questions users must answer before accessing a title, and data from these questions will also be examined. RESULTS: Titles in the DDA plan received much more use than we anticipated. Within 3 months, there were nearly 200 short-term loans and 8 titles were auto-purchased. The majority of the use of titles in the plan came from students and residents, followed by faculty and staff. CONCLUSION: Overall, the DDA pilot was very successful and we plan to continue to use this acquisitions model in the future.'
-
Which VIVO Harvester queries best populate the VIVO Database with the most accurate faculty member publications?
JD Eldredge, PJ Kroth, and E Garbin
The National Institutes of Health encourages its research partners to use VIVO (tm) software to enhance research investigator collaboration. VIVO Harvester was created to populate VIVO profiles with authors' article citations from PubMed. Presently, typical VIVO Harvester queries often inaccurately and incompletely populate author citations. This study identified critical design elements for VIVO Harvester queries in PubMed for accurately identifying author citations.
-
A Comparison of Four Journal Reading Apps
Karen R. McElfresh
OBJECTIVE: The purpose of this poster is to compare four journal reading apps currently available for tablets and smartphones. The four apps are BrowZine, Docphin, DocNews, and Read by QxMD. These apps allow users to read journal articles on their mobile device and have features to help keep users current on publications in a particular journal or specialty area. METHODS: The four apps were compared on the following points: ease of use, cost, number and scope of journals available for reading in the app, platforms and devices supported, and sharing features. Any bonus features unique to a particular app were also evaluated. Information was gathered using each apps website and help documentation, as well as by directly contacting each company for supplemental information. In addition, journal articles and blog posts about the apps were reviewed. RESULTS: All four apps are free to download and offer the same basic features. Each app can be connected to a library's journal subscriptions so that users can access full text articles, either through the proxy server (Docphin, DocNews, Read) or through an institutional subscription to the app (BrowZine, Docphin for Libraries). BrowZine differs from the other three apps in that it has a broader focus and can include non-health sciences journals. Docphin, DocNews, and Read are focused on health care practitioners, especially physicians, and primarily provide access to titles within the health sciences. All four apps allow users to select journals or specialties they want to follow and will alert the user when new articles are published. Each app also offers the user options to share articles, either by email, social media, or by creating a shared collection with the app. Additional features available in some but not all of the apps include PDF annotation, CME credits, and the ability to export articles to citation managers or programs like Evernote and DropBox. CONCLUSIONS: Each of the four apps is easy to setup and use and can serve as an excellent tool for students and health care practitioners with mobile devices. Furthermore, the apps offer users an additional route to access journals, which can increase the use of a library's journal subscriptions.'
-
Research Literacy: Understanding the Academic Publishing Environment
Karen R. McElfresh and Jacob L. Nash
-
Can I Use That? Copyright and Licensing for Health Sciences Educators
Jacob L. Nash
Have you ever found educational material online that you would love to incorporate into your educational activities, but werent sure whether you could? Or, have you ever shared your own educational materials, only to see it turn up on someone else's website without your permission? This session will address copyright as it applies to educators, both for creating your own materials as well as reusing others' in your curriculum. We will attempt to demystify the various aspects of copyright so educators walk away with knowledge they can apply to the classroom today. We will discuss different licensing options available to everyone, from standardized copyright statements to the various Creative Commons licenses, and participants will be able to determine which method best suits their needs. Contrary to common belief, copyright isn't terribly difficult to understand. Managing copyright and respecting the rights of others who have shared their work is relatively easy if you know what to look for, and the information provided in this presentation will give participants the tools to understand and make effective decisions when sharing their work.'
-
Increasing Access to Journal Literature Through Free Interlibrary Loan and Document Delivery: A Case Study with WorldCat Discovery
Jacob L. Nash
OBJECTIVE To identify the effect of a new catalog and linking system, Worldcat Discovery, on usage and adoption of free Interlibrary Loan and Document Delivery for patrons of a Health Sciences Library as well as the effect on use of the bound journal collection. METHODS Interlibrary Loan (ILL) and Document Delivery (DD) requests filled during the two periods of January - June 2014 and January - June 2015 were gathered and compared with each other. Bound journal usage was gathered for the same periods and compared to test if free DD increased use of the bound journal collection. RESULTS We observed a 116% increase in filled ILL requests (n=1500) and a 471% increase in filled DD requests (n=1290) by patrons during the first half of 2015 compared with the same time period during 2014. Bound journal usage measured by in-house use and checkouts decreased by 14% from 2014 to 2015, likely due to patrons requesting items through DD instead. Incorporating print DD fills into bound journal usage for the two periods, we observed a 37% increase (n=375) in the usage of the bound journal collection. DISCUSSION ILLiad and Atlas Systems work seamlessly with Worldcat Discovery to make requesting items simple by auto-populating the request form. Worldcat Discovery places Request' links on print journal records to facilitate requesting bound journal articles. Because Worldcat is an 'open system' our users can search for and identify books, journals, and articles that HSLIC does not own and request them. The spike in DD/ILL increased Copyright Clearance fees but not to a problematic level. These costs will be monitored going forward to ensure this program is sustainable. CONCLUSIONS Making ILL/DD a free, easy to use process has increased usage of the service while increasing usage of the bound journal collection at HSLIC. Worldcat Discovery has made requesting items via DD/ILL a seamless, few-click process for patrons. These findings have implications for Health Sciences Libraries that would like to increase adoption of ILL and potentially increase access to the bound journal collection.'
-
Evolving Issues in Scholarly Communication
Jacob L. Nash and Karen R. McElfresh
As information and communications technologies advance the way that research is conducted and disseminated, how have persistent issues in the process of scholarly communications evolved?
-
Deconstructing Data Governance
Steve Stockdale
Few institutional governance topics have garnered more attention and verbiage in the past two years as that of data (or information) governance. Thanks partly to the promotion of terms such as big data and eScience, more organizations — including academic institutions — are embracing the mantra that data are their second-most valuable asset (after people, of course). This suggests that beyond protection and security, data should be managed not as mere commodity but as a strategic asset. Data governance, then, is really about managing the behaviors of people, not bits. How can you derive an ROI — a Return On Information — that provides true strategic value to your institution? This presentation will stake out the broad landscape of considerations that encompass data governance, then focus on its key elements. Participants will take away a basic framework and approach for defining their own data governance initiatives.
-
Are There Disparities in Health Information Access Among New Mexico Practitioners? Results of a Study
Patricia Bradley, Gale G. Hannigan, and Christina M. Getrich
We designed an exploratory study to find out what information resources are available to New Mexico health care practitioners not currently affiliated with the University of New Mexico. We conducted semi-structured interviews of a purposive sample of physicians, nurse practitioners, nurses, physician assistants, and pharmacists at the location of their practice in all quadrants of the state, including public health clinics. The interview included nine open-ended questions, which were approved by the UNM Human Research Protections Office. Interviews were recorded on an iPad, transcribed, and coded using nVivo (QSR International), a qualitative data coding software package. Fifty-one practitioners particiipated. Their responses indicate that New Mexico pracitioners not affiliated with UNM: are satisfied with their access to information resources to support clinical decision making; are not satisfied with information resources for their patients; would like access to a wider variety of information resources for both clinical information and for their patients.
-
Improving Accuracy of Vital Signs Capture Using Bedside Computerized Reminders for Nurses — Preliminary Results
Philip J. Kroth
The efficient and reliable capture of vital signs and other bedside data in the non-ICU setting has been a challenging problem for the medical informatics community. The problem is compounded by the complexities associated with storage of this data into an electronic medical record system (EMRS). There are a lack of off-the-shelf solutions that satisfy the basic system requirements of bedside data capture, user authentication, data validation prior to storage, error handling, and convenience. With the current state of technology available, we feel the solution to this problem requires the presence of a PC with custom interface software at the bedside. This allows for the successful interface between available vital signs capture devices, existing EMRSs, and the user. This presentation summarizes the alternatives we found and our proposed solution to this important problem.'
-
Provider Stress and Electronic Health Records
Philip J. Kroth
While application of Health Information and Communication Technologies (HICT) has demonstrated significant potential to improve health care and reduced costs, the impact of HICT on health care professionals job satisfaction, productivity, and general wellness is largely unknown. Recent studies suggest that the impact of HICT on clinician stress and burnout may be considerable. Dr. Kroth will present on what is known about clinician stress and burnout that is attributable to the HICT design and outline his currently funded, multi-institutional study to look into this area with scientific rigor.'
-
Celebrating 10 years of the BioMISS: a case study and observations about a successful biomedical informatics seminar series
Philip J. Kroth, Shamsi Daneshvari, and Gale G. Hannigan
Abstract OBJECTIVE: This poster describes the experience of organizing and hosting the University of New Mexico Health Sciences Library & Informatics Centers (UNM HSLIC) Biomedical Informatics Seminar Series (BioMISS). The BioMISS is a CME-accredited, bimonthly program of one-hour invited presentations, with active participant discussion on current topics in biomedical informatics. The goals of the series are to 1) provide a broad overview of salient topics in the field of Biomedical Informatics, 2) provide a forum that fosters interdisciplinary cross-collaboration for research, and 3) provide a forum for Biomedical Informatics fellows, HSC faculty and others to present Biomedical Informatics-related research. METHODS: A quantitative and qualitative analysis of data collected from nine years of seminars about the presenters, their topics, and participants' evaluations was conducted. The goal of the analysis was to identify key factors associated with the success of the series so colleagues contemplating organizing a similar program might benefit. RESULTS: The series occurred approximately 14 times during each academic year. Speakers came from the host institution as well as from multiple external sites such as Sandia National Labs and the State Office of the Medical Investigator. Topics included myriad informatics subjects. Some key factors of success identified are a well-thought out advertising campaign, a regular day and time, and introductions by all attendees at the start of the seminar. CONCLUSIONS: A health sciences library can be the nidus for a vibrant and sustaining seminar series in biomedical informatics that successfully draws in a diverse and interdisciplinary group of presenters and participants.'
-
The Process of Evaluating a Cloud-Based ILS
Karen R. McElfresh, Jacob L. Nash, Robyn Gleasner, Victoria B. Rodrigues, and Laura J. Hall
OBJECTIVE: To describe the process our library used to evaluate OCLCs WorldShare Management Services (WMS), a new cloud-based Integrated Library System (ILS), as a potential replacement for our current system. METHODS: After forming an ILS Review Committee consisting of the staff from the library's technical services, circulation, and IT departments, we viewed multiple webinars and demonstrations given by OCLC staff. We also searched the literature for articles and case studies about WMS, and viewed several online presentations given by libraries that have already implemented WMS. We also conducted telephone interviews with librarians from two different libraries that are currently using WMS. RESULTS: WMS offers many advantages over our current system. WMS combines traditional catalog functions with an Electronic Resource Manager (ERM), which will eliminate the need to maintain records in two places. WorldCat Local, the discovery layer of WMS, is much more intuitive to use, which will be a tremendous benefit to our users. Our research into the experiences of other libraries was predominantly positive, and all libraries reported that they were happy with WMS. CONCLUSIONS: OCLC's WorldShare Management Services is truly an integrated system that will allow our library to provide a more modern and seamless search experience to users. In addition, WMS will help us to streamline the processes and workflows for our technical services staff. For these reasons, our library made the decision to purchase WMS, and we anticipate going live in January 2015.'
-
The Valmora Industrial Sanatorium: A New Mexico Public Health Story
Jacob L. Nash, Laura J. Hall, Zsofia Szoke, and Gale Hannigan
The Valmora Industrial Sanatorium, located in Watrous, Mora County, New Mexico, was one of many Tuberculosis Sanatoria that sprang up in New Mexico around the turn of the century and represented one of the first Public Health efforts to take root in New Mexico. Valmora offered highly patient focused methods of treatment and integrated health education with leading a healthy lifestyle. Founded in 1909 by Dr. William T. Brown, Valmora was reorganized into a non-profit corporation supported by large businesses back east such as Marshall Fields, Sears & Roebuck, and the Chicago Daily News. This created the opportunity for working people to get effective care for TB that in the past was exclusively available to the wealthy. Valmora evolved over the 20th century from a self-sufficient industrial TB Sanatorium to a community clinic for heart and chest patients, in addition to a base of operations for the medical director., Dr. Carl H. Gellenthien, as he practiced old-fashioned' medicine across the better part of northern New Mexico, from delivering babies to stitching up knife wounds.'
-
The Role of Librarians and Informationists in Disaster Response
Laura Banks, Brian Bunnett, and Richard Carr
The National Library of Medicine (NLM) Disaster Information Management Research Center (DIMRC) website provides a wealth of resources for disaster planning, deployment and reporting. Librarians can play a valuable role in training responders in use of tools such as WISER, CHEMM and REMM.
-
A Survey of Medical Schools' Disability Curricula
Ingrid C. Hendrix and Richard M. Kimball
It is a well established problem that people with disabilities (PWD), as with many other groups disadvantaged by social inequities, often receive suboptimal care from health care providers. The root cause of this inequity in care can be traced to a lack of training in dealing with PWD for health care providers. Barriers result from issues of communication, knowledge of resources available, access to clinics/hospitals, difficulty using diagnostic equipment (exam tables, scales, mammography, etc) and attitudes towards PWD. Despite numerous reports outlining this issue and calls to action to address deficiencies in the care of PWD, few medical schools currently address the care of patients with disabilities in their curriculum. This poster provides a survey of disability curricula in medical schools and a summary of their content/approach and effectiveness.
-
Partners in Research Literacy: Librarians and Educators
Ingrid C. Hendrix and Sarah Knox Morley
PURPOSE Research literacy requires health sciences students to effectively locate, evaluate, use, and manage evidence-based information. Students in these programs are required to participate in assignments resulting in papers, posters, or publications. Library faculty created a medical school elective in 2006 using the scholarly communication cycle as a framework to teach information/research literacy. After successfully teaching the course for seven years, the librarian instructors adapted the course to provide a continuing education workshop for faculty. The intent of these offerings is to frame the research or information process as broadly as possible in order to delve into the world of information creation and dissemination. METHODS A School of Medicine course elective (Information Survival Skills') was developed and taught by two academic health sciences librarians. The elective, consisting of five session totaling 7.5 contact hours, involves interactive instructional methods to teach specific research literacy skills to 2nd and 3rd year medical students. Course content includes question formulation, database searching, evaluation of resources, and managing information using personal file management software. Evaluation methods comprised a pre/post self-assessment questionnaire to gauge students' knowledge and attitudes about information resources and skill set. In addition, anonymous post-course evaluations were collected by the Office of Undergraduate Medical Education. As a result of faculty feedback from presentations at medical education conferences, the elective was redesigned in 2012 as a faculty development workshop. This continuing education offering was abbreviated (3.5 hours) but contains similar content. RESULTS Since 2006, eighty-four 2nd and 3rd year medical students have completed the elective. In 2012, eighteen health sciences faculty attended 2 workshops. Both the elective and the workshop have consistently received high marks. Based upon qualitative evaluation data, learners in both groups reported high satisfaction with the hands-on format, introduction to and practice with unfamiliar resources, and information management. Final evaluations illustrate students realize the value of the elective in relation to their coursework, clinical and research experiences. Faculty workshop feedback echoed the benefit to themselves as clinicians/researchers and in their role as educators. CONCLUSIONS There is a broad misconception that students are facile in information retrieval and capable of critically evaluating that information. Faculty development opportunities allow educators to become more proficient in their ability to guide students to evidence-based information. Working in partnership with librarians, medical educators can avail themselves of knowledgeable practitioners and teaching partners to incorporate research literacy skills in courses throughout the curricula.'
-
Effects of Service Dogs Partnered with People with Mobility Challenges
Terry K. Crowe, Suzanne Perea-Burns, Jessica Salazar Sedillo, Ingrid C. Hendrix, Melissa Winkle, and Jean Deitz
Poster reporting the findings of a study investigating the functional performance and social interaction of individuals paired with service dogs.
-
Demonstrating an anthropological application of the Economides orthodontic collection: deciduous and permanent tooth size in European and Hispanic Americans
Heather J.H. Edgar, Michael Haueter, Shamsi Daneshvari, Edward Harris, and Philip J. Kroth
Printing is not supported at the primary Gallery Thumbnail page. Please first navigate to a specific Image before printing.
