Reliability, validity, and responsiveness to change of the Patient-Reported Outcomes Measurement Information System self-efficacy for managing chronic conditions measure in systemic sclerosis

Authors

Susan L. Murphy, Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA; Geriatric Research, Education, and Clinical Center (GRECC), VA Ann Arbor Health Care System, Ann Arbor, MI, USA
Veronica J. Berrocal, Department of Statistics, University of California Irvine, Irvine, CA, USA
Janet L. Poole, Occupational Therapy Graduate Program, University of New Mexico, Albuquerque, NM, USA
Dinesh Khanna, Division of Rheumatology, Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA

Document Type

Article

Publication Date

6-1-2022

Abstract

Objective: The aim of this study is to examine validity, reliability, and responsiveness to change of Patient-Reported Outcomes Measurement Information System Self-Efficacy for Managing Chronic Conditions in persons with systemic sclerosis.

Methods: We conducted a post hoc analysis of the Patient-Reported Outcomes Measurement Information System Self-Efficacy measure and other quality-of-life measures from systemic sclerosis participants from a 16-week randomized control trial. The trial compared an Internet-based self-management program to a control condition where participants were provided an educational book. All participants completed outcome measures at baseline and following the 16-week trial period.

Results: The mean age of participants was 53.7 years, 91% were female and systemic sclerosis subtype included 44.9% limited/sine and 43.1% diffuse; mean disease duration was 9.0 years. All self-efficacy subscales (Managing Emotions, Symptoms, Daily Activities, Social Interactions, and Medications/Treatment) demonstrated good internal consistency (.92-.96). All subscales showed statistically significant correlations with other validated measures of depressive symptoms and quality of life (.20-.86) but were not associated with satisfaction nor with appearance. The subscales appropriately discriminated between those with and without depressive symptoms and demonstrated responsiveness to change over the 16-week period for those who had a corresponding increase in reported quality of life.

Conclusion: The Patient-Reported Outcomes Measurement Information System Self-Efficacy measure is valid, reliable, and responsive to change for persons with systemic sclerosis.

Publication Title

J Scleroderma Relat Disord

ISSN

2397-1991

Volume

7

Issue

2

First Page

110

Last Page

116

DOI

10.1177/23971983211049846

Recommended Citation

Murphy SL, Berrocal VJ, Poole JL, Khanna D. Reliability, validity, and responsiveness to change of the Patient-Reported Outcomes Measurement Information System self-efficacy for managing chronic conditions measure in systemic sclerosis. J Scleroderma Relat Disord. 2022 Jun;7(2):110-116. doi: 10.1177/23971983211049846. Epub 2021 Oct 20. PMID: 35585951; PMCID: PMC9109504.