The Rare Bone Disease TeleECHO Program: Leveraging Telehealth to Improve Rare Bone Disease Care.

Authors

Laura L. Tosi, Division of Orthopaedics & Sports Medicine, Children’s National Hospital, 111 Michigan Ave NW, Washington, DC 20010 USA; The George Washington University School of Medicine and Health Sciences, 2310 I St. NW, Washington, DC 20052 USA
Elmer N. Rajah, Division of Orthopaedics & Sports Medicine, Children’s National Hospital, 111 Michigan Ave NW, Washington, DC 20010 USA
Michael H. Stewart, Osteogenesis Imperfecta Foundation, 804 W Diamond Ave #210, Gaithersburg, MD 20878 USA
Austin P. Gillies, Division of Orthopaedics & Sports Medicine, Children’s National Hospital, 111 Michigan Ave NW, Washington, DC 20010 USA
Tracy S. Hart, Osteogenesis Imperfecta Foundation, 804 W Diamond Ave #210, Gaithersburg, MD 20878 USA
E Michael Lewiecki, New Mexico Clinical Research & Osteoporosis Center, 300 Oak St NE, Albuquerque, NM 87106 USA

Document Type

Article

Publication Date

8-1-2020

Abstract

PURPOSE OF REVIEW: Rare bone diseases constitute ~ 5% of all known rare diseases and can require complex, multidisciplinary care. Advancing access to current medical knowledge is an important strategy for improving care for rare bone diseases throughout the world. To support this goal, the Rare Bone Disease Alliance launched the Rare Bone Disease TeleECHO in 2019.

RECENT FINDINGS: The Rare Bone Disease TeleECHO is a monthly video teleconference that fosters a collegial community of practice and opportunities for active learning through interactive case-based learning. TeleECHO relies on a hub-and-spoke model, where medical professionals at the "hub" provide support and expertise for other healthcare providers, or the "spokes". Evidence of the global reach of the program as well as qualitative feedback from registrants supports the need for rare bone disease education and the value of the TeleECHO model. The Rare Bone Disease TeleECHO helps meet the challenge of disseminating rapidly expanding rare bone disease knowledge by leveraging telehealth.

Recommended Citation

Tosi LL, Rajah EN, Stewart MH, Gillies AP, Hart TS, Lewiecki EM. The Rare Bone Disease TeleECHO Program: Leveraging Telehealth to Improve Rare Bone Disease Care. Curr Osteoporos Rep. 2020;18(4):344-349. doi:10.1007/s11914-020-00595-2