Title

Cancer Journey for American Indians and Alaska Natives in the Pacific Northwest
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Document Type

Article

Publication Date

9-1-2016

Abstract

PURPOSE/OBJECTIVES: To describe the experiences of American Indian and Alaska Native cancer survivors to improve understanding of the trajectory of cancer treatment. 
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RESEARCH APPROACH: Qualitative focus group research.
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SETTING: Rural and geographically isolated American Indian and Alaska Native communities in the Pacific Northwest.
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PARTICIPANTS: 30 American Indian and Alaska Native cancer survivors or caregivers. 
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METHODOLOGIC APPROACH: The authors analyzed data from two focus groups with cancer survivors by using thematic analysis informed by indigenous methodologies.
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FINDINGS: Based on focus group findings, the authors developed a conceptual model of the cancer experience called Rough Waters. Participants described their cancer experience as a collective journey involving family and friends and requiring resources to offset challenges along the way. Dominant themes were delays, isolation, communication, money, advocacy, spirituality, and family involvement.
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CONCLUSIONS: American Indians and Alaska Natives in the Pacific Northwest have special cultural needs during cancer care. The current study provides examples that can guide patient-provider interactions.
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INTERPRETATION: Using the metaphor of cancer as a journey, clinicians can begin a dialogue to identify what will impede or assist the cancer journey for their American Indian and Alaska Native patients.

Publication Title

Oncology nursing forum

ISSN

1538-0688

Volume

43

Issue

5

First Page

625

Last Page

635

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